The 9th European Tay-Sachs and Sandhoff Family conference was held on the 01 – 02 December virtually and was an incredible gathering that brought together experts, advocates, and families dedicated to making a difference in the lives of those affected by Tay-Sachs and Sandhoff diseases. The conversations were not just informative but also characterized by a shared dedication to instigate positive transformations within our community. The gathering took place under the umbrella of ETSCC and was orchestrated by The CATS Foundation. Our appreciation extends to Azafaros, JCR and Sanofi for their generous sponsorship, enabling the successful execution of the conference.
Conference summary
Each day of the conference explored different themes. On the first day we discussed the importance of adherence to clinical trials. The second day included talks related to the research into Tay-Sachs and Sandhoff. A heartfelt appreciation goes out to all the speakers who generously imparted their knowledge, experiences, and expertise throughout the conference. Their valuable contributions have left a lasting impact on our community, fueling our commitment to forge ahead in creating a brighter future for individuals affected by Tay-Sachs and Sandhoff disease. The significance of the 9th European Tay-Sachs and Sandhoff Family Conference cannot be overstated, as it serves as a cornerstone for fostering collaboration, raising awareness, and propelling research efforts forward. By making the conference video recordings accessible on YouTube, our goal is to amplify the reach of this gathering, ensuring that the wealth of insights shared resonates with a broader audience.
The 9th European Tay-Sachs and Sandhoff Family Conference made a big impact on our community.
Theme for day one
We focussed on the adherence to clinical trials in the theme in the first day.
Attendees
Over 100 people from our community, including families, advocacy, clinicians and industry.
Highlights from day one
The variety of speakers gave interesting insights in the importance of adherence in trials.
With attendees from all over the world, the conference continues to be a key event for our community.
Theme for day two
Science and research for Tay-Sachs and Sandhoff were discussed in detail.
Message
The companies conducting research and trials for the diseases gave updates on their work.
Highlights from day two
All of the researchers and companies gave updates on their work and their progress.
The 9th European Tay-Sachs and Sandhoff Family Conference review document to download.
Read
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Inspire
We hope the review document and the recordings inspire you to join one of our future events.
