12+
Years of providing support
- No family should feel isolated after a diagnosis
- Our community is comitted to finding a cure
The CATS Foundation made such a difficult time so much easier for our family - we'd be lost without them and the support they gave us.
Nikki
Mum to Ruby
When our son was diagnosed we got so much help from CATS. Without them, I honestly don't know what we would have done without their support.
Emma
Mum to Stanley
Those first few months were so difficult, without the guidance provided by CATS to help us prepare and come to terms with a diagnosis it would have been so tough.
Jodie
Mum to John
- Need more information on the diseases?
- Need support for you and your family?
- Anything else?
Goals
To raise awareness of testing procedures.
Outcome
More families to receive an early diagnosis.
16
Sep
The CATS Foundation’s “Spot the Stop” Campaign Wins Bronze at PM Society Digital Awards
We’re incredibly proud to announce that our Spot the Stop campaign, developed in collaboration with Verve and
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16
Jul
Azafaros press release: Azafaros announces positive topline Phase 2 study data with nizubaglustat in GM2 gangliosidosis and Niemann-Pick disease type C
We are pleased to share the latest press release from Azafaros related to their study
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15
Jul
New podcast episode: Rare Revelations – of a IMD Consultant
The latest edition of the Rare Revelations podcast featured Dr María Jose De Castro Lopez,
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12
Jul
Third Sector Award Nomination – Communications Campaign Of The Year
We are very very very happy to share that our “Spot the Stop” campaign developed
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29
May
Study identifies red flags of rare disease
Published in Orphanet Journal of Rare Diseases 21st May 2024: A new study, by Medics4RareDiseases,
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23
May
New podcast episode: Rare Revelations – of Late Onset Sandhoff Disease
The latest edition of the Rare Revelations podcast featured Josh who talked through his diagnosis
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