The 8th European Tay-Sachs and Sandhoff Family conference was held on the 09 – 10 December virtually and was an incredible gathering that brought together experts, advocates, and families dedicated to making a difference in the lives of those affected by Tay-Sachs and Sandhoff diseases. The discussions weren’t just informative; they were also marked by a collective commitment to spark positive changes within our community. The event happened under the ETSCC umbrella and was organized by The CATS Foundation.
Conference summary
Each day of the conference explored different themes. On the first day we discussed the the development of information about Tay-Sachs and Sandhoff and how this is shared with families. The second day included talks related to the research into Tay-Sachs and Sandhoff. We extend our heartfelt gratitude to all the speakers who generously shared their knowledge, experiences, and expertise during the conference. Their valuable contributions have made a lasting impact on our community, inspiring us to redouble our efforts in building a brighter future for individuals affected by Tay-Sachs and Sandhoff disease. The importance of the 9th European Tay-Sachs and Sandhoff Family Conference cannot be emphasized enough; it stands as a pivotal moment for fostering collaboration, raising awareness, and advancing research efforts. By making the conference video recordings accessible on YouTube, our aim is to broaden the impact of this event, ensuring that the wealth of insights shared resonates with a wider audience.
The 8th European Tay-Sachs and Sandhoff Family Conference made a big impact on our community.
Theme for day one
We focussed on how information is shard with families and the language which is used.
Attendees
Over 100 people from our community, including families, advocacy, clinicians and industry.
Highlights from day one
The variety of speakers gave interesting insights in the importance of providing clear information.
With attendees from all over the world, the conference continues to be a key event for our community.
Theme for day two
Science and research for Tay-Sachs and Sandhoff were discussed in detail.
Message
The companies conducting research and trials for the diseases gave updates on their work.
Highlights from day two
All of the researchers and companies gave updates on their work and their progress.
