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What is GM2?
What is Tay-Sachs?
What is Sandhoff?
Our work
About us
Our story
Family support
Conferences
Community respite weekend
Spot the Stop
Webinars
ETSCC
Research
Publications
Current trials
Azafaros – PRONTO
IntraBio – IB1001-202
Trial search
Tools
Registry
Clinical toolkit
Educational app
Podcast
Children’s book
New diagnosis packs
News
In the media
News
Contact
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Category:
Media
Home
Portfolio
RARE Revolution Roundtable 2024: Eight Challenges in Developing Rare Disease Therapies
Media
,
Publications
National Health Executive 2024 – Tay-Sachs and Sandhoff disease: how clinicians can support patients & families after diagnosis
Media
,
Publications
RARE Revolution Magazine 2023 (Spring Edition)
Media
,
Publications
Podcast – Frontline Genomics: Patient Perspectives
Media
Global Genes – Rare Leader: Daniel Lewi
Media
Sky News – Sunrise Interview: Daniel Lewi from The CATS Foundation
Media
