The CATS Foundation contributed an article to the Spring 2023 edition which focused on how we are reimagining patient support in a post-COVID landscape. The article touches on how our Family Support Officers have introduced new support tools that are making a big difference to the community. In addition to this, the article explores how we have adapted our support services since the charity was founded in 2011.
About RARE Revolution Magazine
RARE Revolution is an independent not-for-profit publishers dedicated to elevating the voice of the rare disease community through its magazine, online presence, disease awareness campaigns, patient engagement projects and social media. It produces high-quality articles and campaigns to support disease awareness and education across stakeholders, sectors and geographies. Featuring compelling voices and leading emerging conversations, RARE Revolution plays its part in turning the tide for rare disease.
The focus of the article was to share our experiences with the rare disease community and how our support has changed.
Highlights
The article highlights our work of supporting the Tay-Sachs and Sandhoff community
Key message
Supporting families is a vital role that all rare disease charities undertake.
How to share
The article can be shared via the button at the top of this page.
