Our Co-founder and CEO Dan Lewi was asked to contribute an article to the National Health Executive publication to detail the new Clinical Toolkit resource we have developed. Titled “Tay-Sachs and Sandhoff disease: How clinicians can support patients & families after diagnosis”, it talks about the value that digital support tools can have and why their creation with those people directly impacted by a conditions can ensure that the correct content is developed. By highlighting how we are bridging the gap after diagnosis, we hope that these types of tools will become something other rare disease groups will explore to develop.
About National Health Executive
National Health Executive is the leading independent news brand for the UK health sector. We liaise with our audience, industry leaders and influencers to understand health sector challenges and key objectives, enabling us to report unique and exclusive news, comment, analysis and best practice across multiple channels.
Tay-Sachs and Sandhoff disease: How clinicians can support patients & families after diagnosis
Highlights
The article details on Clinical Toolkit project and the impact it is having on our community.
Key message
Digital support tools like the Toolkit we have developed play an important role.
How to share
The article can be read via the button at the top of this page.
