In 2020, Global Genes profiled The CATS Foundation Co-founder Dan Lewi as part of their “Rare Leader” series. The interview focused on the history of the charity, why it was established and some of then key achievements that have been made since 2011. These series of interviews have provided interesting insights on how small advocacy groups have been able to make big changes to the rare disease world.
About Global Genes
Global Genes is a global non-profit advocacy organization for individuals and families fighting rare and genetic diseases. The organization is associated with a blue denim “Genes Ribbon” that is intended to raise awareness of patients affected by rare and genetic diseases. At Global Genes, they are guided by our values. Their team is united by a determination to support the rare disease community and provide what patients and advocates need to take action and thrive.
Rare Leader: Dan Lewi, Co-founder and CEO, Cure & Action for Tay-Sachs (CATS) Foundation
Media topic
The topic of the article was the history and impact of The CATS Foundation
Highlights
We talked through how we have changed the landscape of support and treatments for our community.
Read
You can read the interview on the Global Genes website by clicking the button.
