07
Mar
New podcast episode: Rare Revelations – Rare Disease Day Edition featuring Patricia Durao
In the latest episode of the CATS Foundation Rare Revelations podcast, listeners were treated to
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29
Feb
Rare Disease Day 2024!
Today, as we come together to shine a light on rare diseases through Rare Disease
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22
Feb
The CATS Foundation at the Externally-Led, Patient-Focused Drug Development (EL-PFDD) Meeting for GM2
Last week, the Cure & Action for Tay-Sachs (CATS) Foundation had the incredible opportunity to participate in
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19
Feb
The CATS Foundation at WORLDSymposium 2024 – a review of a great week of science and research
We're thrilled to share the highlights from our experience at the recent WORLDSymposium, where we
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13
Feb
Poster presented at the WORLDSymposium 2024 about our Clinical Toolkit project
We were excited to share some of our work at the recent WORLDSymposium event in
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02
Feb
New publication in the National Health Executive about our Clinical Toolkit for Tay-Sachs and Sandhoff disease
In a groundbreaking move towards enhancing support for patients and families affected by rare diseases,
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22
Jan
Patient-Focused Drug Development (PFDD) meeting with the FDA for GM2 Gangliosidosis
Our friends at the National Tay-Sachs & Allied Diseases Association have been able to secure
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28
Feb
WORLDSymposium 2023 poster – Empowering the GM1 and GM2 community with a co-created education resource about a natural history study
In February 2023 we were delighted to present a poster at the WORLDSymposium that was
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28
Feb
WORLDSymposium 2023 poster – Collaboration between patient advocacy and industry to create a master protocol to investigate the novel therapy acetyl-L-leucine for three ultra-rare neurodegenerative diseases: Niemann-Pick type C, the GM2 gangliosides and Ataxia-telangiectasia
In February 2023 we were delighted to present a poster at the WORLDSymposium that was
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