RARE Revolution Magazine
Advocacy & families
March 2024
The CATS Foundation contributed a Roundtable discussion on the challenges in developing rare disease therapies. The diverse mix of participants in this RARE Revolution roundtable, with representatives from industry, advocacy, consultancy, intellectual property, finance and the media, was no accident. The landscape for the development of rare disease therapies is fraught with challenges, and solving these depends upon close collaboration between all stakeholders. The discussion focussed on highlighting the challenges and how to overcome them.
About RARE Revolution Magazine
RARE Revolution is an independent not-for-profit publishers dedicated to elevating the voice of the rare disease community through its magazine, online presence, disease awareness campaigns, patient engagement projects and social media. It produces high-quality articles and campaigns to support disease awareness and education across stakeholders, sectors and geographies. Featuring compelling voices and leading emerging conversations, RARE Revolution plays its part in turning the tide for rare disease.
Eight challenges in developing rare disease therapies
Highlights
The Roundtable highlights the challenges which are common to all rare disease communities.
Key message
A collaborative approach is vital to address the challenges that have been highlighted.
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