The CATS Foundation presented a poster titled “Collaboration is key: creating a clinical toolkit for the GM2 gangliosidosis community with, and for, clinicians, patients and caregivers in the United Kingdom” at ECRD in 2024. The event, held in Brussels enabled us to share why collaboration is so important when developing materials for patient communities.
About ECRD
The European Conference of Rare Diseases (ECRD) is the largest, patient-led, rare disease policy-shaping event held in Europe. By bringing together people with rare diseases and patient advocates, policy makers, healthcare industry representatives, clinicians, regulators and Member State representatives, EURORDIS harnesses the power of this extensive network to shape goal-driven rare disease policies of the future.
With over 1000 participants, the Conference is an unrivalled opportunity to network and exchange invaluable insights within the rare disease community. Through collaborative efforts, these discussions culminate in clear policy recommendations that can influence both EU and national policies.
Collaboration is key: creating a clinical toolkit for the GM2 gangliosidosis community with, and for, clinicians, patients and caregivers in the United Kingdom
Highlights
The poster explores why collaboration is important when developing resources for families.
Key message
Collaboration is vital when developing materials to support patient communities.
How to share
The poster can be shared via the button at the top of this page.
