Patrons

Julia Ogilvy is founder and chairman of ProjectScotland, a revolutionary national volunteering organization for 16 to 25- year-olds. She won a number of awards in her previous role as Managing Director of Hamilton and Inches, including Scottish Businesswoman of the Year, and was a finalist in the Veuve Clicquot Businesswoman of the Year Award.

More recently she won the Ernst & Young Scottish Social Entrepeneur of the Year Award for her work with ProjectScotland.

She was a member of the Prime Minister’s Council for Social Action, is an elder in the Church of Scotland, a trustee of Buttle UK and a member of the Board of Tearfund. She lives in Scotland with her family and recently wrote a book ‘Turning Points’ which begins with the story of two children who died of Tay Sachs and led to a turning point in her life.
 

Professor Timothy Cox, Professor of Medicine, University of Cambridge and honorary Consultant Physician at Addenbrooke’s Hospital, graduated in Medicine from London University in 1971, and gained his MSc in Biochemistry, MD in Cell Biology/Medicine while at the Royal Postgraduate Medical School at Hammersmith and then MD in Medical Science from the University of Cambridge. His career involves clinical work and medical science; he is a founding Fellow of the Academy of Medical Sciences and directs the Cambridge MB/PhD programme – the first of its kind in the UK.

He is joint mental health drugs Editor of the Oxford Textbook of Medicine and has over 200 publications in his professional interests. These include inborn errors of metabolism, particularly the Lysosomal diseases for which a National Service Centre has been established at Addenbrooke’s Hospital. Tim has pioneered genetic diagnosis and treatments and is active as an investigator in clinical trials. To involve patients and patient organisations in the development of therapies, with Professor Hans Aerts he formed the European Working Group for Gaucher Disease, thus encouraging the involvement of the 24 patient groups which comprise the European Gaucher Alliance. He has worked with governments and pharma companies to ensure funding for treatment but continues to direct a laboratory research programme in Cambridge, principally dedicated to the development of treatments for lysosomal diseases affecting the brain.

Prof Cox is a Fellow of Sidney Sussex college, Cambridge and has musical and literary interests. He is married to Sue, a former nurse and they have four children.
 

Steve is an old friend of Daniel’s and Patricia’s and has been there from the beginning with setting up the CATS Foundation. With his expertise in building websites and using social media, Steve was able to put together the charity site very quickly so we could get the message about Tay-Sachs out to the wider public. Currently living in and around China, Steve is always at the end of Skype to help!