Don’t feel like you’re alone
The day that you received the diagnosis that your child had Tay-Sachs will always be one of hardest days of your life.
However, don’t feel like you’re alone.
There are unfortunately many cases of Tay-Sachs and other lysosomal diseases diagnosed each year all around the world. Each parent, grandparent, sibling or friend will be going through the same emotions as you and it’s important that everyone has someone they can turn to.
There is a great article on Today Was Not About Tay Sachs which your friends could read if they don’t know how they can help.
Those close to you will be able to help you through the hard days, laugh with you during the good days and generally support you. However, they will not be able to relate 100% to how you feel.
Bringing people together
At THE CATS FOUNDATION we would like to put those parents and other family members in contact with other people who have received the same shocking news about their child or family member. If you wish to be added to our list of people who are happy to be contacted by other families then please contact us now. We will then email you a document with some quick questions that you can complete and either email the document back to us or send it in the post.
Your information will not be distributed to anyone other than another family who has had Tay-Sachs impact on their family life.
If you would like to receive this contact list then please sign up to our community. If you state in your message that you would like to be added to the community we will send you a form to complete.
Remember, don’t feel like you’re alone. Unfortunately, you’re not.
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+44 7894 859 752
info@cats-foundation.org
Since the launch we have had over 5 different families get in touch with us.
It doesn’t sound like many, but if you have a child with Tay-Sachs then you will know that 5 is a lot as you were probably told, like us, that it is such a race disease there will not be many others.
Please, don’t feel alone. There are others out there who can help and support. Please get in touch and look through the website. We have direct access to the main research team looking into the cure for Tay-Sachs so if we can’t, we can get someone to answer any questions you may have.