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  • What is GM2?
    • What is Tay-Sachs?
    • What is Sandhoff?
  • Our work
    • About us
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    • Family support
    • Conferences
    • Community respite weekend
    • Spot the Stop
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      • Azafaros – PRONTO
      • IntraBio – IB1001-202
    • Trial search
  • Tools
    • Registry
    • Clinical toolkit
    • Educational app
    • Podcast
    • Children’s book
    • New diagnosis packs
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    • News
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Author: DanielLewi

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WORLDSymposium 2023 poster – Cherry red spot: Evidence that its identification can speed up the diagnosis of GM2 gangliosdosis
28 Feb
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WORLDSymposium 2023 poster – Cherry red spot: Evidence that its identification can speed up the diagnosis of GM2 gangliosdosis

In February 2023 we were delighted to present a poster at the
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WORLDSymposium 2021 poster
15 Mar
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WORLDSymposium 2021 poster

In February 2021 we were delighted to present our latest poster alongside
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National Organization for Rare Disorders (NORD) Summit 2020 Poster
15 Mar
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National Organization for Rare Disorders (NORD) Summit 2020 Poster

In October 2020 we were delighted to present alongside our registry partners
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Intrabio IB1001-202 Clinical Trial
15 Mar
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Intrabio IB1001-202 Clinical Trial

The FAQ and clinical trial brochure for the Intrabio IB1001-202 trial can
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NOW Enrolling: GM2 gangliosidosis Gene Therapy Clinical Trial at Queens University
15 Mar
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NOW Enrolling: GM2 gangliosidosis Gene Therapy Clinical Trial at Queens University

Global enrollment is now open for the TSHA-101 clinical trial at Queens
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IB1001 Ongoing, Multinational Clinical Trials update
21 Oct
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IB1001 Ongoing, Multinational Clinical Trials update

IntraBio is currently conducting three clinical trials with its lead compound IB1001 (N-acetyl-L-leucine) across
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Great Hockham Farmers Christmas Market

There will be a stall for The CATS Foundation at the Great
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Charity Football Game for The CATS Foundation – Photos
29 Nov
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Charity Football Game for The CATS Foundation – Photos

Here are the photos for the charity football game for The CATS
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13 in 13 Marathon No.3 – Saxon Shore Marathon
28 Nov
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13 in 13 Marathon No.3 – Saxon Shore Marathon

The next race for the 13 in 13 marathon challenge is the
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