The CATS Foundation, through its membership of the UK LSD Collaborative, a coalition of seven UK-based patient advocacy groups, presented a poster titled “Mental Health Implications in Lysosomal Storage Diseases: Insights from the UK LSD Collaborative Community Survey” at ECRD in 2024. The event, held in Brussels enabled us to share our insights from the the LSD Collaborative Community Survey with a focus on the impact of mental health on the LSD community.
About ECRD
The European Conference of Rare Diseases (ECRD) is the largest, patient-led, rare disease policy-shaping event held in Europe. By bringing together people with rare diseases and patient advocates, policy makers, healthcare industry representatives, clinicians, regulators and Member State representatives, EURORDIS harnesses the power of this extensive network to shape goal-driven rare disease policies of the future.
With over 1000 participants, the Conference is an unrivalled opportunity to network and exchange invaluable insights within the rare disease community. Through collaborative efforts, these discussions culminate in clear policy recommendations that can influence both EU and national policies.
Mental Health Implications in Lysosomal Storage Diseases: Insights from the UK LSD Collaborative Community Survey
Highlights
The poster explores the role mental health plays in various lysosomal storage diseases.
Key message
Mental health is a topic that needs further research in the field of LSDs.
How to share
The poster can be shared via the button at the top of this page.
